March 2017

Today was a whirlwind of a day. Two trips to the hospital, two trips to the pharmacy, cleaning, and packing. In the morning, Avery had his EKG and then we met with Dr. Wolff. Avery’s QTc was 405, so again, he’s in the normal range. He asked what my decision was regarding the anti-epileptic medication. […]

Tubingen - Wednesday, March 29 & Thursday, March 30

Wednesday: Since Avery went to bed late last night, he slept in late too. We had a slow morning and then went to town in the afternoon to run last-minute errands and have lunch/dinner. Thursday: This was the hardest day of the trip so far. At 3am, I woke up to Avery breathing in a […]

This morning was the day for free breakfast at the McDonald House. We filled our stomachs and then went to the hospital at 9am. I wasn’t sure what time the EEG and EKG were going to be. Once there, they informed us that at 10am we would meet with the nutritionist, then Dr. Wolff, and […]

Tubingen - Saturday, March 25-Monday, March 27

Over the weekend, my mom, Avery, and I did a little exploring. On Saturday we visited the Bebenhausen Cistercian monastery and palace. The castle was nothing amazing, but much of the original furniture and decorations were there to see. Along the walls hung numerous deer heads and other animals. The kings of Wurttemberg sure loved […]

Tubingen - Friday, March 24

Today was another full day at the hospital. We got there at 9am, and soon after, Avery was called in for his EKG. He did great. He was calm and still. Then we went over to the EEG department and without much wait, they got him ready for his EEG. My efforts to get him […]

Tubingen - Wednesday, March 22 & Thursday, March 23

The last two days have been pretty uneventful for Avery. It’s mostly a good thing at this point. He is currently on half of his normal dose of topiramate and has slightly increased 4-AP. We have not seen any seizures, and we have not noticed any significant change in behavior (good or bad). Avery has […]

Tubingen - Tuesday, March 21

Every Tuesday the McDonald House has a free breakfast for all the guests. It was a typical German/European breakfast with breads, cheeses, meats, yogurt, muesli, fruit, and eggs. We had about a half hour to eat and then we needed to be at the hospital to meet with Dr. Wolff. Today’s appointment with Dr. Wolff […]

Tubingen - Monday, March 20

After a fun weekend in Stuttgart with our friends, Mike & Ellie Bowe, today marks the beginning of a two week stay in Tubingen for Avery’s medical needs. We have come here to see the doctors that Avery saw back in July and to move forward with figuring out if this experimental medication (4-AP) can […]

Veliko Tarnovo

Friday & Saturday, March 10 & 11 My parents haven been great about visiting Brian and I in the homes abroad. They came to Mexico a couple of times and they came to Rio a few as well. My dad wasn’t able to make it on this trip, but my mom came and stayed for […]

Slovenia: March 2-5

Thursday, March 2 Our Lufthansa flight departed Sofia at 6:50pm. We had a layover in Munich and then on to Trieste. It was a late night since we didn’t arrive there until 11pm and then we had to drive an hour to Ljubljana. Whenever we go through airport security, it’s always more of a hassle […]