G-tube Operation

Avery just had surgery yesterday to have a g-tube installed. Thankfully, the surgery went well, and despite some complications afterwards, he seems to be recovering. Oriana, as always, deserves the medal of honor. She is putting in the work of loving and caring for Avery over the next days in the hospital (and weeks in […]

Avery's one year update!

Avery turned a year old recently! We had a nice weekend snowboarding with friends the few days before his birthday, and then on the day of, we had a small celebration. In some ways a year has gone fast, but in other ways, I suppose time has been slowed down. Either way, a lot has […]

Saturday, July 30th

On Saturday we went to meet our close friends we’d worked with for three years in Brazil, Mike and Ellie Bowe. Like us, they were in between jobs, and also like us, they were moving to Europe. Actually, they were moving only half an hour from where we’d been staying for the last three weeks, […]

Thursday, July 28th

We grabbed some breakfast to go in order to meet Dr. Wolff at the hospital at 9am. He wanted to check Avery’s thigh to make sure his little wound from the skin biopsy was looking OK. Oriana and I had some concern because one of the bandages was already coming off. Those who’ve been around […]

Saturday to Tuesday, July 23-26

The last days have been absent of any hospital visits, so we’ve had some time to be tourists. Before going into any touristy stuff though, I’ll provide an Avery update. Over the last days we’ve slowly upped Avery’s dosage of 4-AP from 1.5mg 3x a day to 2mg 3x a day. This means that with […]

Thursday, July 21st

It’s not like we’ve been crazy busy or spent countless nights with Avery as an inpatient, but it’s amazing how just a few hours a day in the hospital can zap you. Of course, you’re almost always there in the first place for some stressful reason, so I’m sure that has something to do with it […]

Tuesday, July 19

I met Oriana at the hospital around 9am. I expected to see her bleary-eyed from a sleepless night in the shared hospital room, but she was able to get a few hours of rest and then shake off the cobwebs. Most of our day at the hospital was uneventful, which I guess isn’t a bad […]

Weekend of July 16-17

  Because Avery’s treatment was delayed, we had no hospital appointments and were free to relax and see some of the city. Both Saturday and Sunday we didn’t get out of bed until after 11am, a result of carried over exhaustion and still not being adjusted to the timezone. After a quick brunch on both […]

Thursday, July 14

We ate breakfast at 9am and got to the hospital before Avery’s scheduled appointment at 10am. Due to our continued unfamiliarity with the German language and healthcare system, we ended up waiting in the wrong area for over half an hour. Eventually we asked somebody (in English!) and were directed to where we needed to […]

July 10th-July 12th

Day 1 – Sunday, July 10 Sunday was our first day of long travel. We had a 2.5 hour trip down from the mountains where we were for Josh and Sonia’s wedding, and then after a bit of cleaning and packing in Irrigon, we had another 2.5 hour trip to Portland. Avery didn’t sleep at […]